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This week Daryl  has had some increased pain, swelling in his neck  and difficulty swallowing.  We are thankful to be on a Fentayl patch,  which as really helped to maintain a baseline of  pain management.  His frequency of “breakthrough” pain meds is actually decreased.  His visible neck tumors have been challenging my nursing skills.  To help put the neck tumor dressing  in perspective. . . . Imagine or I you have tried, to wrap anything round with wrapping paper. This may require several different strips of paper, lots of tape and then when you think your done, you realize you can still see the ball!  This is my  daily challenge with frequently changing his neck wounds. Also at any given time, one  of them  decides to bleed non-stop. I have become proficient in silver nitrate sticks. ( a new skill!)   Needless to say the sight of blood is a norm for us. Daryl is always patient as I try to navigate all the dressing changes!

Daryl has appropriately names the blog  “Voyage and Battle with Mr. C”  As we begin another battle with the next treatment on Tuesday  #5. We are  focusing our thoughts and prayers on our friend Mr O (Optivo). We are waiting for  Mr O to knockout Mr. C, at least for one round!

We are blessed to have representative from the Lincoln “Ham Fan club” stop by to see Daryl. Aunt Nancy , Uncle Joe and Bailee, stopped by from Illinois. They have been on a road trip from Illinois to California and San Diego was one of their stops, specifically to see Daryl.  It was great to have them as first time visitors to Casa de Lu. We hope to see them back for Christmas this year in Illinois! It always boost our spirits to see love of family and friends.

Thank you for all the prayers! Keep them coming! We thank and love each of you!

Love Daryl and Charlotte

5 thoughts on “Dressing changes and battles

  1. Good report char..I am sure the Lincoln fan club helped to cheer Daryl

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  2. Hello Team Lu,
    Your courage and love continues to inspire me. I am so grateful to have you in my life and send you love and light always. I am always down for a visit to Casa de Lu. I will be out of CA from July 28 – August 6. Other than this, you are my priority and am a phone call away for ANYTHING. I love you so ❤ ❤ ❤

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  3. Charlotte — You are doing a courageous job that I am sure most of us would be unable to do. Our thoughts are with you both every day.

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