“May the Fourth” Treatment be over

Even thought Daryl is a Star Trek fan, I could not resist the Star Wars pun.  Today Daryl completed the 4th round of Chemo. We have it down to a science of organized packing for Chemo Day (see the picture above). Backpack  #1 (DLU) – electronics, earphones, whiteboard, diabetic supplies, dressings, tube feeding,  Back pack # 2 – feeding pump Backpack #3 (CLU) work computer and work to do. Lastly, small lunch cooler for snacks of Italian Ice, puddings, jello and this week homemade lemonocello cookies!  Since Daryl is a regular he gets to pick his chair.  The front row, which is prime seating, view of outside fountain,  quiet end close to the bathroom and  extra room for all our “stuff”

The ongoing tube leaking saga continues! He has good and bad days with sometime no rhythm or reason for leaking. We have researched website, tries different creams, ointments etc. Just when it start to look better. . .  .BAM leaking again. This is horrible pain for Daryl. Imagine having raw skin and then pouring acidic fluid on it. I don’t know how he does it.  Today, while at chemo we did have the dietician come who is known for her “magic” with feeding tubes. She gave use a great tip to put tape around the end of the tube close to the disc, so the tube will not slide. This will help to keep in more secure to the skin. . .genius! Who knew a small wrapping of tape could help! Fingers crossed! There were concerns with the amount of leakage and the color, so they request an order  for  IR (Interventional Radiology) to have it looked at.  Guess where we are going Monday morning . . . back to IR for a potentially new g-j tube! They really made things happen!

Daryl had a MRI  of his neck on Saturday, for an update on the status of his tumors. This was painful for Daryl because it is hard to lie flat, but he made it thru like a trooper with some choice words for some of the technicians. We are waiting for Dr. Kossman and Dr. Mansfield to review.

The first grade class at Blessed Sacrament School (my grade school alma mater) all made cards for Daryl. This was my Dad’s idea and our great niece Addison is in the class. The cards brought great smiles to our face’s and were very touching. They all said “Mr. Lu” and had lots of rainbows, prays and some really fascinating art work! It made our day! See the picture below of Daryl with the cards.

Thank you for everyone’s continued prayers, love and support!

Love Daryl and Charlotte