What a week!

Monday: Lab work drawn and appointment with Dr. Kossman. Daryl’s weigh is  up to 131 lbs! Dr. Kossman said he looks good and ready for chemo and commented on Daryl’s new hairdo which is very much like his own. Dr. Kossman sports the fresh shaved head look.

Tuesday: Second  round of at the  Outpatient Infusion Center at Sharp.  We  packed his backpack the night before, like going to the first day of school: iPad, headphones, blanket, dry erase board and marker, extra cartons of tube feedings, syringe for flushing j tube, insulin, glucometer, check, check and check. His tube feeding and pump also have their own backpack! Ready Set Go!  We arrive at 8:00am and left around 3:00pm.The nurses and staff are very friendly and told us about the process and each of the drug for his “cocktail”. They also arranged his scheduled for the remainder of the treatments, follow-ups after chemo and Dr. visits. We are all confirmed every 21 days till the end of June. Above Daryl is enjoying his favorite treat the Italian ice which results in his red teeth!

Wednesday. We had a follow-up on back at the infusion Center for a Nupagen shot that helps to boost his WBC. Hopefully insurance will cover a new device, so he will not have to go back each time for the shot. Thankfully insurance did approve for home health to come and give Daryl his replenish IV fluid at home verse going back to the Infusion Center. Wed, Thurs and Friday, the home health nurse will come  and gave Daryl a antinausea medication and 2 liters of fluid.  Hydration is key after the chemo!

Thursday: Follow-up with Dr. Sandler our endocrinologist, because Daryl’s calcium was begin to climb. Dr. Holdy, his endocrinologist in the hospital, actually call me at home on Tuesday to let me know his concern and to stop his calcium. When is the last time a Dr. called you at home? Daryl has touched so many people, the concern for him is amazing! We also had a visit from Stella, the social worker. She was there to see if we needed any help. She was very impressed with al the support we have from family and friends. She remarked how rare it is to see someone have such support! We are truly blessed! Hydration #2

Friday: Daryl has been very fatigued this week and Friday was not a good day. We were supposed to have a follow up with Dr. Mansfield’s and have PT come, but this was too much. I rescheduled because the #1 thing he needed was to rest! Everyday this week we had appointments and this required the navigation of the 26 steps  up to our house.  Plus the effects of the chemo. Hydration #3.

He is resting more comfortably and each day is getting stronger. This is our calendar for April – Green is Daryl appts, Blue is my work travel and Red is friends visiting or staying while I am away. Is okay to be tired and only the first week of April?

Thank you for all the prayers and support! Love Daryl and Charlotte