joey

Daryl is HOME! He was discharged  late on Wednesday and we have been busy getting everything arranged for his home care.  Daryl has had a feeding tube for a while now, but previously he has done all his feeding via gravity. (as seen in previous photos). Now that he has a G-J tube, the feedings go in the J portion (jejunum) it needs to be control by a pump.  So we welcome Joey the kangaroo pump to Casa de Lu!  It is very small and compact and even comes with its own back pack!

We have an  IV pole for Joey, that is great for when he is sitting on the couch. When Daryl went to bed on Wednesday, we realized the IV pole would not work. The base of the IV pole has a larger girth than my waist. ( makes me feel thin). Also the bag has to be 6 inches above the base of Joey. Please enter Charlotte MacGyver.  We placed Joey on the dresser and I built an “IV pole” with a small photo album base, a three-tier plate stand a ponytail holder and a binder clip! I knew that plate stand would come in handy! I did go on a mission to Target and found the new IV stand. Any guess what it is?

pole

We are getting our normal routine down with meds and dressing changes. We had a visit from the new home health nurse, which Daryl had frequent eye rolling with all the questions.  Daryl is still  pretty weak, so he needs assistance with walking and getting around the house. We are hopeful  he will get stronger ever day and PT is scheduled to come to the house next week.

We feel very blessed to have Daryl home! We wish everyone a  blessed Easter to you and your family! Love Daryl and Charlotte

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