Waiting game

Surgery Date: We are still waiting for the actual surgery date, of course, we would like sooner than later! Part of the challenge is coordinating  4 different surgeon’s  schedules. One surgeon returned from vacation last week to see Daryl and one is on vacation till tomorrow. Yes, surgeons are allowed to take vacations.😕 We hope they will be all rested and ready for Daryl. When you have the A team of surgeons, it is a challenge to orchestrate a day, but we feel confident we will know soon.

Insurance Fun:  I am learning many things about insurance, some good and some bad. For the most part our insurance company has been great with approvals and coverage. Last Friday I found out a nuance about tube feedings. The insurance covers Daryl’s tube being put in, syringes and supplies,  but not the actual feeding. According to the case worker, they only cover tube feedings for infants who need nutrition when leaving the hospital. Last I checked Daryl was not an infant. When my inquiring mind asked more, she explained it like this ” We do not cover food for a cardiac patients that needs a special diet, and this is considered food. ‘Interesting, I said, except one BIG difference . . . my husband can not eat or drink anything, and his only source of  food is thru the tube.’ Sorry your plan does not cover tube feedings.”   So we had challenges this past weekend to get “food” for Daryl. We used Glucerna, then tried his previous tube feeding formula, this was working till Sunday when he started to have severe stomach aches.  Nurse Charlotte, then came up with things to help the stomach aches and get things moving. Last thing Daryl needed was this! We have now ordered the Gytrol thru Amazon and are anxiously awaiting the delivery to make things consistent!  Still a head scratcher . . .

A dear friend of our sent us the Sunflowers, (pictured above) which really brighten the day! We take each day to appreciate the small things and know that God has a plan for Daryl. He has an amazing attitude and outlook for this voyage. Getting strength from his faith, prayers, family and friends.

To end on a positive note, the Dodgers are in the World Series! While there is a heat wave in SoCal, we will be watching from the comfort of our air-conditioned home. . . . yes we put in air conditioning in a few years ago, and we don’t need it often , but are very thankful we have it today!

Thanks again for all your prayers and support!