
Todays medical word is Epiglottis: a flap of cartilage at the root of the tongue, which is depressed during swallowing to cover the opening of the windpipe. It closes to stop food from going down the trachea, and opens to allow breathing. Think of it as the valve on top of the vertical exhaust pipe on the side of a semi truck that opens and closes.
Our appointment with Dr Mansfield was a mix of good and bad news. The good news is some of the swelling is down and the vocal chords are moving. . .Positive! Unfortunately, Daryl’s epiglottis is now impeding his airway, possibly as a result of the radiation. This is not a good situation as it makes it difficult for Daryl to breathe, as a result of pooling secretions and increase coughing. He has been on a high dose steroids for the past week. The dose had been decreased and there has been a notable change. Steroids are not a long-term answer, due to their many negative side effects. The Dr’s recommendation is for Daryl to proceed with the tracheostomy. This will allow Dr. Mansfield to do a much needed biopsy and have a good look at what is going on with Daryl’s throat. We agreed this is the best solution, and need to move forward. He will be having the surgery sometime next week.
We will meet this challenge, like we do everything with a positive attitudes, love and support from family and friends and our faith. After the Dr’s appointment, Daryl was able to receive the Sacrament of the Sick from our priest, Fr. Alex. This sacrament consists of the priest laying hands on Daryl and anointing him with blessed oil and praying “thorough this holy anointing may the Lord in his love and mercy help you with the grace of the Holy Spirit. May the Lord who frees you from sin save you and raise you up” He anoints Daryl forehead, hands, and Fr Alex also anointed his throat. This brought us great strength.
Daryl’s prior to surgery goals:
- Nutrition: He is up to 3 tube feedings which he does himself . I think he secretly wants to be a nurse, or feels his nurse can improve her skills! Plus he drinks three Boost which both of those give him 2,100 calories/day. He will occasionally have soup, eggs or whatever sound good. He has enjoyed a few of my Ina Garten Outrageous Brownies. Also the daily “pine-mosa’s” have been quite refreshing for him!
- Strength: Walk around the house and visits for the mani-pedi, doctors visit and today a haircut!
- Sports-:It is postseason – MLB wildcard and playoffs. His favorite sport and the Dodgers are in . . .. . . and the Cubs!
We thank everyone for the support, messages and most of all prayers. We feel blessed to have each of you in our lives!
Keep up the spirit! We are all thinking of you.
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Daryl and Charlotte, We send you so much love, many prayers, and positive energy! XO, John & Kristy
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Celebrating the positive news that the swelling is down and the vocal chords are moving!! Praying that the tracheostomy might possibly be temporary and you will be fully restored to your good health very soon! Christ is after all the Great Physician! Will be covering you in prayers ❤
All our love and positive vibes coming your way!
xo
Brenda, Dylan and Wyatt
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Char and Daryl-
How about a Cubs- Dodgers rematch?!
Hope Daryl is recovering and feeling stronger each day. Char, can you sneak a TV into ICU for Daryl to enjoy the series?
Sending prayers and Go CUBS!
Teresa
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Actually we watch
the cubs game in the ICU. His room had a TV. I thought I may need to be admitted from watching that game! Next up the Dodger
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